After 35 years of life, I have a few things to say.

Tag Archives: surgery

IMG_1097And I’m off and running.  Day 1 and my book is started.  1772 words so far and I might do a few more pages tonight.

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Since I can remember, I have wanted to write a book.  I have the stories to share, but I have never taken the time to put them down on paper.  Well, I think now is the time to get started.  Why now you ask?  Well, I’m not entirely sure, but I have just recently started blogging again and it feels good, so I guess it has inspired me to look back on what I really want to write.  Anyone who knows me well knows that I am no stranger to hospital stays and surgeries, and I have the scars to prove it to the ones who don’t know me.

At a very early age, I was diagnosed with Hydrocephalus.  I have been through many surgeries, a few shunts, and lots of hospital food trays.  Today, I have zero shunts, zero headaches, and have been surgery-free for 15 years.  This was made possible with new cutting edge technology and the surgeons willing to try something different.  I want to write a book telling my story, not only as a historical record of my journey, but also to give families hope that there are success cases out there.  I am here and healthy and I want all the parents of hydro babies to know that their kids can grow up healthy like me.  Hydrocephalus doesn’t have to control their lives.  I just feel like my story can help in some way, to show the possibility of a positive outcome which doesn’t end in headaches and more surgeries.  It’s time for me to share.

Another reason I am ready to start now is that I found out about a novel writing contest in November.  Even though I am not looking to write a novel at this time, from the site of that contest, National Novel Writing Month, I found another challenge just for me, The Write Nonfiction in November Challenge. I’m going to do my best to finish my book in a month, but more importantly, I am going to start my book in November.  If it takes longer, so be it.  The challenge for me at this point is just to start.  Anything more is icing on the cake.  Wish me luck.

I hope you stick around and read my work when it is complete.  I will try not to make you wait too long.

Goodnight.

Simon.


I’ve been through a lot in my life, as some of you may know. My medical history reads like a novel, and the surgical scars on my body tell so many stories. But it’s ok, because everything that I have been through has made me the person I am today. I am here and I am grateful.

My friend Sarah is running the Walt Disney World Marathon right this second, as I type this. In fact, just a few minutes ago, Mickey posted her progress on her Facebook wall, as she just crossed the 10 mile mark in under an 1:40:00. It’s amazing to me that anyone can run a marathon, especially someone I know, who I have watched from the beginning of training. She has come a very long way and I’m proud of her for making it this far.

Everyone I know has challenges in their lives. Some have bigger challenges than others, but overcoming the challenges that are important to you is the most important thing. My challenge a few years ago was to run a 5K. I did that. Last year, it was to ride a century on my bike in one day. I did that. This year, one of my challenges is to do a triathlon. I am signed up for a Sprint Triathlon in April and I am looking forward to it. I don’t anticipate any “sprinting”, but all I want to do is finish. I know it is a race, but the only one i am racing against is my own doubt. It’s easy to say you can’t do something. It’s hard to do something new. I just think it looks fun. Like my Spin Class teacher always says, “If it was easy, everybody would be doing it.”.

Baby steps is all it takes and every challenge can be overcome. Sarah is proving that right now. She is such an inspiration to many, including me.

Happy Sunday Everyone.

Simon A.